Local non-profit Xtraordinary Joy led a human foosball tournament Sunday at Trinity United Methodist Church to raise awareness of a rare chromosome disorder.
Amy Meacham, the founder of Xtraordinary Joy, and her husband, adopted two-year-old Moriah Joy Meacham in 2014, not knowing the journey they were about to take. Moriah was diagnosed with an extremely rare X-chromosome deletion disorder, which means that there are 46 missing genes in her X-chromosome.
Meacham decided to make a change. She founded Xtraordinary Joy to fund research for these unstudied disorders in hopes that one day there will be an understanding of how to treat it.
“It’s really been eye opening to see how many families in Alachua County that have children with rare, unstudied disorders like Moriah’s with a chunk of DNA missing,” Meacham said.
The Gator Women’s Soccer team participated in the tournament as “The Fairies,” and won the tournament after facing 27 other teams.